My pops had Parkinson's too. Diagnosed at 60 and passed away at 80 in the thick of the first lockdown in 2020. He stayed at home for the first 10yrs of his diagnosis and then moved into a retirement home at 70. It was a decision made by myself and my brother to allow my Mom some of her life back, because she was super fit and healthy, while caring for him was becoming increasingly difficult. My Dad also really wanted it, so that made things easy as many parents may be resistant. We put him on a wait list at that time for a LTC, so that whenever his situation worsened to the point he needed a LTC, he would get in much quicker. The LTC places we wanted him to go into had 3yr wait lists and all were in the Toronto/Mississauga area so that myself and my brother could visit him often. I immediately became power of attorney for care and financial when he was 70 and still lucid. Get those things in order asap, otherwise figuring those things out when they are not lucid is much more challenging.
A lot of the advice given by
@Mad Mike is bang on. The suitability of places varies greatly from one to the next, for both retirement homes and LTC. I must have visited about 30 LTC homes and about 15 retirement homes. I made up a spreadsheet to track all the differences on the things that were important to us, which made picking the top 5 LTC and the best retirement places much simpler.
Here's some useful stuff that might come in handy for anyone going through something similar:
The LHIN has been rebranded yet again by the province, but likely offers the same core services.
Nous représentons maintenant Santé à domicile Ontario, un seul organisme qui coordonne la prestation des services de soins à domicile et en milieu communautaire, de placement en foyer de soins de longue durée et de renvoi vers les services communautaires. Même si notre nom a changé, nos services...
healthcareathome.ca
This Scarborough based site has a good amount of information and referrals available and looks like they are the LHIN-type, OHIP based service for what many will need, which is what I would have used many years ago to start the process for my pops. There should be similar websites in other regions. This is your starting point and best ongoing resource to discuss developing or new issues with an assigned caseworker who will become to know your folks. After a caseworker initially meets your parents, they would determine their need or priority for long term care placement among other things. This is a good thing to start sooner than later, because waiting lists for long term care can be long for the good places and so getting in early improves your chances of your folks getting into a good spot. Even though you may be looking for home care help, or a retirement home first, a long term care place might be a need down the road if their care needs exceed what home care or a retirement home can provide. They may also have good referrals for extra assisted living serviced for free in retirement residences for your more immediate needs. They can also offer a wealth of suggestions, tips and solutions for some of your pressing needs or questions:
Health care services offered at home, at school, and in the
www.centraleasthealthline.ca
This agency was one I used for my Dad to come in and do a few different types of assessments (behavioural, ergonomic) to give me some good advice on how to manage some things or products to buy. I used their services for free through my Dad's caseworker at LHIN, but after they had completed their free services, they also offered to provide some ongoing services for a fee, based on a plan they put together after his assessments. I didn't use their fee-based services, but they did give some very helpful tips on managing his care.
www.loftcs.org
Lastly and more related to Parkinson's, the Movement Disorders clinic at UHN is great. It took us a few years to get in there, but their care team was very experienced and leaps and bounds better than the regional neurologists who overprescribed him meds at the start of his Parkinson's journey.
The overprescription of medication by well-intentioned but overworked doctors is a real thing, so be mindful, get involved and do your homework.